Misophonia Convention 2014 (with Bonus Patient Panel Video)

$59.00

ORLANDO, FLORIDA

Speakers

Dr. Marsha Johnson, AuD 

Dr. Jaelline Jaffe, Ph.D. Psychology, 

Dr. Christopher Spankovich, Ph.D.  

Dr. Cindy Simon, AuD,

Dr. Scott Sessions, DC, 

Tom Dozier, MS,

Michael Mannino, Ph.D. Candidate, Neurology,

Meredith Rosol, Graduate student from Baltimore

Description

Two full days, 8 am to 5 pm.  About 125 people attended including a large group of teenagers and children. This was the biggest group so far with this convention only in its 2nd year! We had a great group of presenters and some fantastic panels presentations by attendees and by the youth group.  Also good break out sessions where the speakers/presenters led different topics, people signed up for one of three choices each day.

The Misophonia Association board of directors held a lunch meeting and selected three new members, Abby Dees, attorney, from California, Karissa Anderson, accounting, and Susan Hodo, CPA.  Meredith Rosol will act as a non-voting advisory member.  Marsha Johnson was selected as President, Susan Hodo as Treasurer, Cindy Simon as Secretary.

Immediate goals for the group:  selection of 2015 convention site, set up Meet Up Chapters around the globe, create effective organizational structure including the search for a part-time association manager in 2015, formalize the membership process to attract donations and contributions, publish lists of global resources and research, assist in forming an international research professional group, and create materials that can be used by members and public, i.e., letters for the 504 educational plan process and workplace rights.

We managed to acquire a terrific logo, too, from a very sweet kid named Meghan!

Ambitious goals?  We can do it.  We have already done so much.

A father of a misophone, Ed, offered to rework and create a new website to help.

Another participant offered to head up any study volunteers-needed,  list for the M.A.

A volunteer, Seth Shapiro, who came to manage our technical equipment and in so many other ways, stepped right up and started creating all sorts of internet goodies for us.  What a wonderful young man!

One family just donated $500 to help other people attend this convention, wasn’t that just amazing!

We would like to thank WIDEX, our corporate sponsor, for paying for two snacks, and providing technical equipment and Zen to Go Demo units plus being there for two days!  Thank you Lesley and Eric!

A life changing experience, all basically run by volunteers and the most delightful people, ever, and meeting so many sincere and intelligent and sweet kids, teens and adults, just makes life so much better.

We are gathering steam and energy and we will move forward.  Come with us.

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